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I have never been officially diagnosed by a doctor with b12 deficiency, but I diagnosed myself when I made the best of not having a family doctor and being able to look over my blood tests themselves since they let me have them for my own records until I could find one. 220 (units) was the measure. The acceptable range on the sheets was ~170-800. I didn’t get that, along with a battery of other things tested for, to find out nothing was wrong with me; obviously something was, even if what was tested didn’t show! So I looked up every test result online, trying to find anything. Lo and behold, in north america, according to wikipedia article then, like the lab said, my b12 was fine. But if I lived in Japan, I’d be getting shots for it at anything under 400units! I eventually settled on taking 1000mcg/day orally of cyanocobalamin for awhile. It helped some of my issues, and my b12 levels are up in the 500 area now. (But again, no doctor told me about this, I had to see the results for myself.)

Eric, seeing as you have no choice but to take cyanocobalamin orally, you should take large oral doses of it you still think you are b12 deficient. I have also *just* been diagnosed as a celiac, which means I definitely had digestion issues when I was orally supplementing with cyanocobalamin, and it was still absorbed passively through my damaged intestines, just like I thought it would. Yes, taking a larger dose is necessary when using something that has reduced absorption.

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Hi,

I’ve been diagnosed with b12 deffiency since im 14, now 23. My doctor always recomended injection of once a month 1000mcg.

I see now this is most likelly not enough. Im now currently in Thailand for 1 year and all they have is the cyanocobalamin version(which also was prescribed in canada), I don’t have access to the other. Will this type suffice for now? I see that it is less effective, but would a higher dose work or am I out of luck this I get back to canada?

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Chris, yes, thank you for responding. My neuro, fortunately, was very up to date on B12 and left no stone unturned. I went through your article and this site with a fine toothed comb and made sure I was checked for everything, and as to the numbness and tingling, had them rule out all metals and toxins as well. Unfortunately, that neuro was my MS Dr. and when that DX was disproved, and CIDP was found, I was sent to a different clinic at Wake Forest where this neuro specializes in neuropathy. His answer to this drop was to augment with under the tongue B12. Fine. Maybe that will keep me more steady but my thing is why. Why is it so low and why am I having so much trouble. What Dr. would specialize in this? Would it be a hematologist? or something else. I have horrible bowel issues, being told that it is most likely permanent nerve damage from the CIDP and misdx. My lumbar punch was 123 for protien. To further complicate this, I have a brain tumor in the mid brain, what is believed to be a pilocytic astrocytoma.

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MINNEAPOLIS, MN - FEBRUARY 3: Andrew Wiggins. Copyright 2018 NBAE (Photo by Jordan Johnson/NBAE via Getty Images)

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